Health and Healthcare in Adults with Autism Spectrum Disorder

Health and Healthcare in Autistic Adults: The Health and Healthcare in Autistic Adults study is currently recruiting and interviewing participants. The purpose is to understand what autistic adults do for their health and what their experiences are with doctors and other healthcare professionals. We are conducting one-on-one interviews with middle aged and older autistic adults, and their emergency contacts, about their experiences.

Interested in learning more about participation? Visit our Participate in Research Page

How Autistic Adults Use Money to Live

How Autistic Adults Use Money to Live: This study will begin recruitment soon. The purpose is to understand how autistic adults use their money to live and how they find and access anti-poverty programs. We will be conducting one-on-one qualitative interviews with both autistic adults and with disability service providers about their experiences. Please reach out if you are interested in participating.

LEND Outcomes Study

The goal of the LEND Outcomes Study is to examine the impact of Leadership Education in Neurodevelopmental Disabilities and Related Disorders (LEND) training on knowledge, attitudes, and skills related to the LEND core competencies two years after completion of LEND training in a group of former LEND trainees and matched comparison peers across three LEND sites. For more information about the LEND Outcomes Study, visit our page here: LEND Outcomes Study

If you’re interested, please contact Dr. Lauren Bishop at

Medicaid Data Analysis

The Medicaid Data Analysis uses Wisconsin Medicaid data to examine differences in physical and mental health problems across neurodevelopmental disability groups including, but not limited to, autism spectrum disorder, intellectual disability, schizophrenia, and Down syndrome. Data is utilized to describe costs and service utilization among Medicaid enrollees with a neurodevelopmental disability, and examine how temporal effects or changes in policy impact health outcomes and service use. Our project aims to identify opportunities that will improve health outcomes and reduce costs, such as early intervention, care management, or introduction of care protocols to reduce variation in care.

Medicare Data Analysis

The Medicare Data Analysis project harnesses the largest population-level sample of adults diagnosed with autism spectrum disorder studied to date. Our goal is to gain more understanding of the epidemiology, health quality, treatment, and health outcomes associated with autism spectrum disorder in a notionally-representative Medicare Fee for Service population of 51,132 adults with autism spectrum disorder.